DEBRA IS THE ACRONYM FOR THE DYSTROPHIC EPIDERMOLYSIS BULLOSA RESEARCH ASSOCIATION.
THERE ARE NOW DEBRA "NATIONAL GROUPS" IN ABOUT 40 COUNTRIES WORLDWIDE. A NEW "UMBRELLA" NONPROFIT ORGANIZATION, DEBRA INTERNATIONAL, WAS LAUNCHED IN 2008. EBMRF HAS BEEN AN ABIDING PARTNER IN THIS ENDEAVOR SINCE 2007. RARE DISEASE ADVOCACY ORGANIZATIONS HAVE GIVEN STRONG SUPPORT FOR OUR EFFORT SINCE 2009. THE DEBRA GROUPS AND OTHER EB ORGANIZATIONS WORKING IN ACCORD FOR INTERNATIONAL EB AWARENESS WEEK (in no particular order) ARE...
THIS WEBPAGE IS SO CHECK BACK WEEKLY TO WATCH OUR PROGRESS...
"Walk a Mile in My Shoes" campaign © 2010 is the principal endeavor in recognition of "International Epidermolysis Bullosa Awareness Week." Founded in 2007, WAM is an organized alliance of affirmed nonprofit organizations dedicated to three objectives: boosting universal awareness about Epidermolysis Bullosa (EB); raising funds to effect the most promising research and family support programs; and advocating for all who are touched by this disease. We respect your desire for privacy and will not share personal information with third parties. All images, text and files are © "Walk a Mile in My Shoes" 2010, and may only be used as indicated. The documents contained in this website are presented for information purposes only. This material is in no way intended to replace professional medical care by a qualified EB specialist, and should not be used as a basis for diagnosis or treatment.